Wednesday was another frustrating day with yet again no firm answers on why we haven't scheduled surgery but I had an opportunity to spend a good part of the day at the hospital grilling the staff. Today we get to make some decision. First off I found out yesterday that they have been trying to schedule an operating room. Why? Well, according to hospital policy the G-Tube (PEG) is a simple out patient surgery and that can be done in a procedure room but for some unknown reason the circumcision needs to be done in the operating room. I think it might have something to do with the fact that urology is involved but I couldn't get a straight answer on that. The other thing I found out yesterday is that urology only does circumcisions on Mondays and Tuesdays. What! So they've been jerking us around for the whole week and we couldn't get the circumcision done anyway. We let them know that we thought the situation was totally unacceptable but what are we going to do. We've now wasted the better part of another week dealing with this crap and we still don't have anything scheduled.
We decide that we need to move forward with the PEG procedure even if that's the only thing we can have done. We're told we can get on the schedule for Friday. Great! We could have had this done earlier in the week if people had actually spent some time to communicate with us. We ask them to move forward and get us on the schedule for Friday. The surgery is scheduled for 2:00pm Friday afternoon.
The other frustrating thing we find out today is they took Eli off his BiPAP at about 5:00am this morning. Patricia went ballistic when she found out and demanded they put him back on the BiPAP during the afternoon. I don't know what we need to do to get it through to the nurses and RT's that Eli needs to be on this mask for support. It seems like we're fighting this battle every other night.
Before we leave for the evening we ask that they make sure Eli is on his BiPAP and gets a good night of respiration for his big day tomorrow.
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